Since that first stand-up moment two weeks ago, Bob has continued to move forward – literally. The next day, July 7th, with his smiling physical therapist by his side, he took five steps, rested, and repeated the drill four times. He increased that record each day, and by the end of the week was able to do it holding onto a walker instead of grasping bars on each side. We know you can believe that watching him was as meaningful to us as those historic first steps on the moon.
I’m writing this on July 19 – three months since the accident. Bob is now back at the Shady Grove Adventist Rehabilitation Hospital, which means he has graduated from “sub-acute” rehab to “acute” rehab – technical-speak for a more vigorous regime of work he can start doing in physical therapy now that his legs have gained strength. We feel grateful to the great PT team at the Hebrew Home in Rockville, who got him started on his first steps. He’s excited to be working with the Adventist team, especially with Erica, a wonderful therapist with a magic way of inspiring a sense of “I Can Do It!”
To help his efforts, Bob wears a specially designed pair of “boots” which give his legs support. Even more important: consistent, loving support – visits and beautiful messages from his Williams Syndrome family, as well as from aunts, uncles, cousins, dear friends, and fellow workers from the Government Printing Office. As he moves through this life-changing experience, he tries to see what’s happened and what’s ahead with new understanding. His sister Susie has been his special mentor in this ongoing process – listening, helping him to find words for feelings and to keep his emotional balance in the face of so many changes and uncertainties. One of us is there with him for several hours every day, and his brother David and sister Mimi make the trip as often as possible.
His thoughts and insights are gifts to us as we travel this road by his side. He and Susie have been keeping a journal (he dictates, she scribbles down his words) of his reflections, his difficulties, pain, grief, and wishes. What has helped him get through? “Low expectations,” he dictates, drawing on conversations he’s been having with his sister. “One day at a time. And waiting to see what comes…”
Yesterday, he said, “I can walk gingerly, but I can walk. And from little seeds, flowers can grow. I’m hearing the Indigo Girls’ song in my head – ‘Closer to Fine.’ And that’s the way I feel – a little bit closer to fine.”
Monday, July 20, 2009
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9 comments:
Hi Robert,
Susan and I were just saying that we haven't seen you at UUCR in a long time. We didn't know what happened and were missing you.
I'm sorry to hear about the accident, but am glad you are on the mend. I hope you continue your recovery and will send you good thoughts.
Mary Hoferek
Glad to hear you are making super progress! I look forward to seeing you back at UUCR when you are better. I am glad you have so much music to draw on for inspiration. One of my favorites, which I learned as a Girl Scout, starts out: "I want to be strong, to be strong as the land around me. I want a heart that is wide as the sky. I want a spirit like a moving mountain stream. I want to look people straight in the eye!" Maybe you know it.
Keep thinking strong, positive thoughts, and I will do the same for you. --Terri Fritz
Hi Bob,
Amy called me last night so excited that you are making such progress. She said "I knew he would do it. He never quits trying!" I am so happy to know you are walking and making strides in recovery. We think of you every day and wish we could be there to cheer you on but these notes will have to do.Just keep going!!
Love,
Amy and Nene
Hi Bob, sorry I haven't check in for awhile. So glad you are back in the rehab place. Sounds like you are making some great progress. I am not surprised. I have always believed in the one day at a time appraoch!! Going to build an arc up here in Maine pretty soon. The rain is crazy. Take care my friend. Bill Hughes
Hi Bob, We are thinking of you often, keeping positive thoughts flowing from Treasure Island, Florida...love "seeing" your smile and hearing about your great strides. (literally!) with love,debby,bernie,mikey and lily
Bob, loved seeing your smile and hearing of your great strides (literally!) keep up the great attitude. we think of you often and send lots of love and good wishes from Treasure Island, FL. debby,bernie,mikey and lily
Hi Robert,
Glad to hear you are making such excellent progress. We are sending you good thoughts and holding you close to our hearts.
Mary Hoferek
Hi Robert,
How are you doing? Susan and I have been thinking of you often and sending you good thoughts and our love.
Mary Hoferek
Hello dear Bob,
It's a little late to be chiming in, but sometimes news travels slowly to the Left side of the country. I just heard about your accident and brave recovery. My hat is off to you! I broke my ankle right around the time you had your accident and it ---a much less complicated accident (I slipped on ice) was incredibly painful and the recovery seemed so long...and it's still going on. So I have such an appreciation for the dedication, persistence, courage, and good humor that you've had throughout this. Bravo Bob! Much love, Cyndi (in San Francisco)
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